Table 1.

Baseline characteristics of patients with CGD in the MENA region

Patients characteristicsValues
Number of patients 322 
Male:female 1.8 
Age of disease onset Mean 20.2 (SD: 54.7) mo, median 6.0 (IQR 2.0–18.0) mo, range 0–53 years 
Age at diagnosis Mean 40.1 (SD: 64.4) mo, median 20.0 (IQR: 7.0–48.0) mo, range 0–58 years 
Age at last follow-up (survival age) Mean 10.6 (SD 9.0) years, median 8.5 (IQR: 3.0–15.0) years, range 0.3–63.0 years 
Family history of CGD 104 (32.3%) 
Consanguinity 194 (60.2%) 
Early diagnosis after birth 55 (17.1%) 
Death of a previous sibling 72 (22.4%) 
Genetic diagnosis 98 (30.4%) 
HSCT 38 (11.8%) 
Mortality 53 (16.5%) 
BCG vaccine 278 (86.3%) 
Survival (10-year) Overall 77.3% 
AR-CGD 88.0%, XL-CGD 49.6% 

HSCT, hematopoietic stem cell transplantation; AR-CGD, autosomal recessive chronic granulomatous disease; XL-CGD, X-linked chronic granulomatous disease; BCG, bacillus Calmette–Guérin.

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