Table 1.

Clinical characteristics in two patients with RD

UPN1UPN2
Gender Female Female 
Body weight (g) 3,086 3,068 
Gestation (week) 38 36 
TREC (copies/μl) <10 copies/µg DNA 
KREC (copies/μl) NA 
ANC (×109/L) 0.04 0.01 
ALC (×109/L) 0.06 0.14 
CD3+ (×109/L) 0.05 0.01 
CD4+CD45RA+ (×109/L) 0.01 0.01 
CD19+ (×109/L) 0.01 0.04 
CD16+CD56+ (×109/L) 0.01 0.03 
Physical findings Athymia, ventricular septal defect, sensorineural deafness Thymic hypoplasia, sensorineural deafness 
Gene variants AK2, NM_001625.4: c.498+1G>A and c.409C>T, p.Arg137Ter AK2, NM_001625.4: c.308G>A, p.Arg103Gln and c.409C>T, p.Arg137Ter 
Total period of rhG-CSF administration before HSCT (days) 129 78 
Dose of rhG-CSF 40 µg/total 75 µg/total 
Conditioning regimen BU + CY FLU + MEL 
Graft source UR-CBT R-BMT 
UPN1UPN2
Gender Female Female 
Body weight (g) 3,086 3,068 
Gestation (week) 38 36 
TREC (copies/μl) <10 copies/µg DNA 
KREC (copies/μl) NA 
ANC (×109/L) 0.04 0.01 
ALC (×109/L) 0.06 0.14 
CD3+ (×109/L) 0.05 0.01 
CD4+CD45RA+ (×109/L) 0.01 0.01 
CD19+ (×109/L) 0.01 0.04 
CD16+CD56+ (×109/L) 0.01 0.03 
Physical findings Athymia, ventricular septal defect, sensorineural deafness Thymic hypoplasia, sensorineural deafness 
Gene variants AK2, NM_001625.4: c.498+1G>A and c.409C>T, p.Arg137Ter AK2, NM_001625.4: c.308G>A, p.Arg103Gln and c.409C>T, p.Arg137Ter 
Total period of rhG-CSF administration before HSCT (days) 129 78 
Dose of rhG-CSF 40 µg/total 75 µg/total 
Conditioning regimen BU + CY FLU + MEL 
Graft source UR-CBT R-BMT 

UPN, unique patient number; ANC, absolute neutrophil count; ALC, absolute lymphocyte count; TREC, T cell receptor excision circle; KREC, κ-deleting recombination excision circle; HSCT, hematopoietic stem cell transplantation; G-CSF, granulocyte colony-stimulating factor; BU, busulfan; CY, cyclophosphamide; MEL, melphalan; UR-CBT, unrelated cord blood transplantation; R-BMT, related bone marrow transplantation; NA, not assessed.

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