Table 1.

Subject characteristics

n (%)
Sex 
​ Male 49 (71.0%) 
​ Female 20 (29.0%) 
Age 
​ Median 9 years 
​ Range 6–16 years 
Race/ethnicity 
​ American Indian/Alaska native (non-Hispanic) 4 (6.45%) 
​ Asian/Pacific Islander 9 (14.52%) 
​ Black 3 (4.84%) 
​ Hispanic (any race) 19 (30.65%) 
​ White/non-Hispanic 27 (43.55%) 
​ Unknown 7 (6.4%) 
Mutation 
​ DCLRE1C 4 (5.8%) 
​ IL2RG/or JAK3 34 (49.3%) 
​ IL7R/or CD3D 10 (14.5%) 
​ RAG1/2 11 (15.9%) 
​ Unknown 10 (14.5%) 
Trigger for diagnosis 
​ FH 12 (17.4%) 
​ Infection/or clinical symptoms 24 (34.8%) 
​ NBS 33 (47.8%) 
Donor type 
​ Autologous (GT) 3 (4.4%) 
​ HLA matched sibling 4 (5.8%) 
​ HLA matched unrelated/other non-sibling relative 25 (36.2%) 
​ HLA mismatched relative 23 (33.3%) 
​ HLA mismatched unrelated 14 (20.3%) 
Type of conditioning 
​ None/immunosuppressive therapy alone 38 (55.1%) 
​ Reduced intensity/myeloablative 31 (44.9%) 
n (%)
Sex 
​ Male 49 (71.0%) 
​ Female 20 (29.0%) 
Age 
​ Median 9 years 
​ Range 6–16 years 
Race/ethnicity 
​ American Indian/Alaska native (non-Hispanic) 4 (6.45%) 
​ Asian/Pacific Islander 9 (14.52%) 
​ Black 3 (4.84%) 
​ Hispanic (any race) 19 (30.65%) 
​ White/non-Hispanic 27 (43.55%) 
​ Unknown 7 (6.4%) 
Mutation 
​ DCLRE1C 4 (5.8%) 
​ IL2RG/or JAK3 34 (49.3%) 
​ IL7R/or CD3D 10 (14.5%) 
​ RAG1/2 11 (15.9%) 
​ Unknown 10 (14.5%) 
Trigger for diagnosis 
​ FH 12 (17.4%) 
​ Infection/or clinical symptoms 24 (34.8%) 
​ NBS 33 (47.8%) 
Donor type 
​ Autologous (GT) 3 (4.4%) 
​ HLA matched sibling 4 (5.8%) 
​ HLA matched unrelated/other non-sibling relative 25 (36.2%) 
​ HLA mismatched relative 23 (33.3%) 
​ HLA mismatched unrelated 14 (20.3%) 
Type of conditioning 
​ None/immunosuppressive therapy alone 38 (55.1%) 
​ Reduced intensity/myeloablative 31 (44.9%) 

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