Table 1.

Clinical presentation of P440S LCK patients

Laboratory data upon presentationP1P2
Age at presentation First days after birth 1.5 mo 
Vaccination BCG, Hep B at birth, Hep B, polio (oral), DTP, HiB at 2, 4, 6, 18 mo, MMR at 12 mo BCG, Hep B at birth, Hep B, polio (oral), DTP, HiB at 2, 4, 6 mo 
Clinical condition before HSCT Age: 6.7 years
Weight: 17.0 kg (<3rd percentile)
Feeding via PEG
Coarse “strawy” hair, thrush, distended abdomen, hepato-/splenomegaly
Pulmonary CT: Bronchiectasis and emphysematous bulla left lower lobe 
Age: 2.8 years
Weight: 9.0 kg (<3rd percentile)
Hepato-/splenomegaly 
Complete blood count (reference ranges) 
Leukocytes (cells/μl) 6,500 (5,200–11,000) 3,600 (5,200–11,000) 
Hemoglobin (g/dl) 11.2 (11.9–14.7) 9.0 (10.8–12.8) 
Platelet count (cells/μl) 690,000 (247–436 × 10e3) 202,000 (286–509 × 10e3) 
Neutrophils (cells/μl) 3,130 (2,000–9,000) 1,510 (2,000–9,000) 
Eosinophils (cells/μl) 0 (80–600) 0 (80–600) 
Basophils (cells/μl) 6 (0-120) 0 (0–120) 
Monocytes (cells/μl) 710 (80–720) 430 (80–720) 
Lymphocytes (cells/μl) 2,450 (2,300–5,400) 1,656 (2,300–5,400) 
T cell (CD3+) phenotype (reference ranges) 
CD3+ (cells/μl) 494 (1,400–3,700) 298 (1,400–3,700) 
CD3+CD4+ T cells (cells/μl) 93 (700–2,200) 232 (700–2,200) 
CD3+CD8+ T cells (cells/μl) 345 (490–1,300) 33 (490–1,300) 
Naïve T cells (% CD45RA+/CCR7+ of CD3+CD4+ cells/μl) 1 (45–83) 3 (45–83) 
TCRαβ+/TCRγδ+ T cells (cells/μl) 445 (1,320–3,780)/49 (90–500) 248 (1,320–3,780)/33 (90–500) 
TCRαβ+/TCRγδ+ T cells (% of CD3+89/10 86/11 
TRECs (number of copies) 0 (>8) 0 (>8) 
NK-like T cells (cells/μl)
CD3+CD56+CD16+ 
25 (2–80) 0 (2–80) 
T cell (CD3+) function (% of control) 
(SI, [% of control])
PHA
CD3/CD28
MLC
Tetanus
Candidin 

111 (40)
101 (52)
10 (10)
1 (0)
6 (0) 

349 (34)
374 (54)
23 (11)
1 (0)
33 (41) 
B cell phenotype (reference ranges) 
CD19+ (cells/μl) 963 (390–1,400) 1291 (390–1,400) 
Naïve B cells (% CD19+IgD+CD27 of CD19+ cells/μl) 99 (47.3–77.0) 99 (54.0–88.4) 
Transitional B cells (% CD19+IgM++CD38++ of CD19+50 (4.6–8.3) 12 (3.1–12.3) 
Memory B cells (% CD19+CD27+ of CD19+ cells/μl) 0.5 (18.6–46.7) 0.7 (7.8–37.1) 
Switched memory B cells (% CD19+CD27+IgM of CD19+ cells/μl) 0 (10.9–30.4) 0.1 (4.7–21.2) 
Marginal zone–like B cells (% CD19+IgM+IgD+CD27+ of CD19+ cells/μl) 0.4 (5.2–20.4) 0.6 (2.7–19.8) 
KRECs (number of copies) 209 (>4) 260 (>4) 
Serum immunoglobulins 
IgG serum level (g/liter) 8.5a (2.9b) (5–14.6) 7.5a (4.5–9.2) 
IgM serum level (g/liter) 0.26 (0.24–2.10) 1.74 (0.19–1.46) 
IgA serum level (g/liter) 0.08 (0.27–1.95) 0.76 (0.2–1.0) 
Specific antibodiesb Tetanus, S. pneumoniae n.d 
Laboratory data upon presentationP1P2
Age at presentation First days after birth 1.5 mo 
Vaccination BCG, Hep B at birth, Hep B, polio (oral), DTP, HiB at 2, 4, 6, 18 mo, MMR at 12 mo BCG, Hep B at birth, Hep B, polio (oral), DTP, HiB at 2, 4, 6 mo 
Clinical condition before HSCT Age: 6.7 years
Weight: 17.0 kg (<3rd percentile)
Feeding via PEG
Coarse “strawy” hair, thrush, distended abdomen, hepato-/splenomegaly
Pulmonary CT: Bronchiectasis and emphysematous bulla left lower lobe 
Age: 2.8 years
Weight: 9.0 kg (<3rd percentile)
Hepato-/splenomegaly 
Complete blood count (reference ranges) 
Leukocytes (cells/μl) 6,500 (5,200–11,000) 3,600 (5,200–11,000) 
Hemoglobin (g/dl) 11.2 (11.9–14.7) 9.0 (10.8–12.8) 
Platelet count (cells/μl) 690,000 (247–436 × 10e3) 202,000 (286–509 × 10e3) 
Neutrophils (cells/μl) 3,130 (2,000–9,000) 1,510 (2,000–9,000) 
Eosinophils (cells/μl) 0 (80–600) 0 (80–600) 
Basophils (cells/μl) 6 (0-120) 0 (0–120) 
Monocytes (cells/μl) 710 (80–720) 430 (80–720) 
Lymphocytes (cells/μl) 2,450 (2,300–5,400) 1,656 (2,300–5,400) 
T cell (CD3+) phenotype (reference ranges) 
CD3+ (cells/μl) 494 (1,400–3,700) 298 (1,400–3,700) 
CD3+CD4+ T cells (cells/μl) 93 (700–2,200) 232 (700–2,200) 
CD3+CD8+ T cells (cells/μl) 345 (490–1,300) 33 (490–1,300) 
Naïve T cells (% CD45RA+/CCR7+ of CD3+CD4+ cells/μl) 1 (45–83) 3 (45–83) 
TCRαβ+/TCRγδ+ T cells (cells/μl) 445 (1,320–3,780)/49 (90–500) 248 (1,320–3,780)/33 (90–500) 
TCRαβ+/TCRγδ+ T cells (% of CD3+89/10 86/11 
TRECs (number of copies) 0 (>8) 0 (>8) 
NK-like T cells (cells/μl)
CD3+CD56+CD16+ 
25 (2–80) 0 (2–80) 
T cell (CD3+) function (% of control) 
(SI, [% of control])
PHA
CD3/CD28
MLC
Tetanus
Candidin 

111 (40)
101 (52)
10 (10)
1 (0)
6 (0) 

349 (34)
374 (54)
23 (11)
1 (0)
33 (41) 
B cell phenotype (reference ranges) 
CD19+ (cells/μl) 963 (390–1,400) 1291 (390–1,400) 
Naïve B cells (% CD19+IgD+CD27 of CD19+ cells/μl) 99 (47.3–77.0) 99 (54.0–88.4) 
Transitional B cells (% CD19+IgM++CD38++ of CD19+50 (4.6–8.3) 12 (3.1–12.3) 
Memory B cells (% CD19+CD27+ of CD19+ cells/μl) 0.5 (18.6–46.7) 0.7 (7.8–37.1) 
Switched memory B cells (% CD19+CD27+IgM of CD19+ cells/μl) 0 (10.9–30.4) 0.1 (4.7–21.2) 
Marginal zone–like B cells (% CD19+IgM+IgD+CD27+ of CD19+ cells/μl) 0.4 (5.2–20.4) 0.6 (2.7–19.8) 
KRECs (number of copies) 209 (>4) 260 (>4) 
Serum immunoglobulins 
IgG serum level (g/liter) 8.5a (2.9b) (5–14.6) 7.5a (4.5–9.2) 
IgM serum level (g/liter) 0.26 (0.24–2.10) 1.74 (0.19–1.46) 
IgA serum level (g/liter) 0.08 (0.27–1.95) 0.76 (0.2–1.0) 
Specific antibodiesb Tetanus, S. pneumoniae n.d 

Age-matched reference values for B cell subpopulations taken from Piątosa et al. (2010); age-matched reference values for other blood cell counts taken from Shearer et al. (2003) or certified internal control series. Reference values are age matched. Abnormal values are in bold. Hep B: hepatitis B; DTP: diphtheria, tetanus, pertussis; HiB: hemophilus influenzae type B; MMR: measles, mumps, and rubella; PEG: percutaneous endoscopic gastrostomy; MLC: mixed lymphocyte culture.

a

IgG serum level after start of substitution.

b

Reported IgG serum level/specific antibodies before the start of substitution.

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